Who are we?

We are the parents of a little girl who tragically died in September 2019, aged just six years old. We have both worked in the NHS for many years.

Our only daughter suffered from respiratory problems after swine flu and a rare genetic condition called Niemann-Pick Type C.

We were involved in a dispute with the hospital where she was being cared for. The doctors thought that our daughter should be allowed to die but we fought for her to have active treatment. On two previous occasions when she was critically ill, we had successfully argued against her life support being withdrawn. She improved both times.

We felt we could keep our daughter alive longer than the doctors thought.

August 19 2019

In August 2019, she was very ill. The doctors told us that they were going to end her life support. 

The police were called. This led to a terrifying experience for us, which you can see here:

Our daughter was a fighter and lived another 4 weeks. Just three days before the Court was due to decide whether our daughter’s life support was to be ended, she tragically died. We were and remain devastated. She was our only daughter and our heartbreak is unimaginable.

She was only six years old.

Our case

Our daughter’s death and our treatment by the hospital and the police have turned our lives upside down.

We are deeply unhappy with the treatment and care given to our daughter by the hospital. We make those criticisms not only as parents, but also as fellow doctors. After cases like Charlie Gard,  Alfie Evans and many other unknown children, doctors and hospitals should know how to support families like ours and make sure incidents like this should not have happened. Many other parents have approached us facing this terrible situation and we want to help them too.

We also want to hold the police to account for the shocking way they treated us in our family’s darkest hour.

We are still living through this nightmare and desperately need your help.

People around the world have been shocked and disgusted at how the hospital and the police treated our family when we needed their help the most.

It should not have come to this. We hope and pray that no parent finds themselves in our position.

Unfortunately we think if things don’t change, there will be many more parents like us. There should be transparency and openness and parents should be treated with compassion and respect.

Why we need your help 

We need your help to fund our case against the police. We are also fighting to release more details of our case into the public domain. We think everyone should know about what happened to us so that changes are made and it never happens again.

Initially, we seek to raise £12,000.

Please help us.